How is information collected about me in AMALFI?
Potential participants for AMALFI are identified by their GP Practice and sent an invitation pack. Those who are interested in taking part, complete a questionnaire which is returned to the study coordinating centre in Oxford. This information is the only data that the study team has about participants at the beginning of the study. However, further information will be requested from your GP and the coordinating centre in Oxford will ask for information about your health from NHS Digital. The AMALFI team would send your name, date of birth, NHS number and postcode to NHS Digital, who can link this information to individual participants in the study. NHS Digital provides information about any admissions to hospital (called Hospital Episode Statistics) as well as information about people who may have passed away, in order that the study does not make contact and cause any distress to relatives. This information includes date and cause of death. At any time you can contact the study team to withdraw permission for the study to get this information.