What are my data rights?
European data protection regulations apply in this study and these laws require us to tell you about the rights you have over the personal data collected about you in the study.
The University of Oxford is using your personal data for research purposes; it will only process personal data as necessary to undertake research that is being carried out in the public interest. This is known under data protection law as our legal basis for processing your personal data.
Your rights to access, change or move your data are limited as the University of Oxford needs to manage your information in specific ways in order for the research to be reliable and accurate. You have the right to access any personal data that is held about you by the AMALFI team and the right to ask us to correct any inaccurate personal data we hold about you. You have the right to restrict or object to processing of your personal data. However, if you decide that you do not want any more information collected about you by the AMALFI team, the University of Oxford may be obliged by law to keep information already collected to ensure consistency and reproducibility of the study results. Rights to receive an electronic copy of the personal data held about you are also limited.
Further information about your rights with respect to your personal data is available at https://compliance.web.ox.ac.uk/individual-rights
We will be using information from you, your medical records and NHS Digital, and will use the minimum personally-identifiable information possible. We will keep identifiable information about you for up to 12 months after the study has finished. However, we will store the de-identified research data and any research documents with personal information, such as consent forms, securely at the University of Oxford for 25 years after the end of the study as part of the research record.
If you are not happy with the way your data has been handled by the AMALFI team you have the right to lodge a complaint with the study sponsor (01865 616480 or firstname.lastname@example.org) and/ or the Information Commissioner’s Office (0303 123 1113 or www.ico.org.uk).